What networks or websites have you used for support or information about your illness?
I haven’t used many networks or websites in the past. The main one I frequented in the past was http://www.hystersisters.com.
I also frequented https://endometriosis.supportgroups.com. I found that there was lots of information and help regarding Endometriosis.
I have not been as successful with PCS. I generally perused websites that came up when I googled PCS. Most times I got something unclear like
“Pelvic congestion syndrome. Some doctors believe enlarged, varicose-type veins around your uterus and ovaries may result in pelvic pain. However, other doctors are much less certain that pelvic congestion syndrome is a cause of pelvic pain because most women with enlarged veins in the pelvis have no associated pain.”
Retrieved March 21, 2017 from http://www.mayoclinic.org/diseases-conditions/chronic-pelvic-pain/symptoms-causes/dxc-20208136
These sites and statements in essence made me quite doubtful since the medical fraternity itself was in doubt about PCS.